epidermolysis
Americannoun
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It also contains a logo from EB Research Partnership, a nonprofit co-founded by Vedder and his wife, Jill, after a childhood friend’s son was born with the painful skin condition epidermolysis bullosa.
From Los Angeles Times ● Aug. 27, 2025
The teen was born with dystrophic epidermolysis bullosa, a rare genetic condition that causes blisters all over his body and in his eyes.
From Seattle Times ● Jul. 24, 2023
He was born with a genetic disease called junctional epidermolysis bullosa that leaves his skin as fragile as a butterfly's wings.
From BBC ● Dec. 23, 2017
Dr. Uitto also cautioned that epidermolysis bullosa often involves damage to internal tissue, like the lining of the esophagus and urinary tract, that gene therapy for the skin cannot repair.
From New York Times ● Nov. 8, 2017
Caring for children with epidermolysis bullosa is not cheap either, Marinkovich notes, adding that it can cost $100,000 a year to dress their wounds—which is sometimes not covered by insurance.
From Scientific American ● Nov. 8, 2017
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