epidermolysis
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It also contains a logo from EB Research Partnership, a nonprofit co-founded by Vedder and his wife, Jill, after a childhood friend’s son was born with the painful skin condition epidermolysis bullosa.
From Los Angeles Times ● Aug. 27, 2025
The teen was born with dystrophic epidermolysis bullosa, a rare genetic condition that causes blisters all over his body and in his eyes.
From Seattle Times ● Jul. 24, 2023
He was born with a genetic disease called junctional epidermolysis bullosa that leaves his skin as fragile as a butterfly's wings.
From BBC ● Dec. 23, 2017
The boy’s disease, junctional epidermolysis bullosa, causes extremely fragile skin that blisters and tears, and is prone to infections and skin cancer.
From New York Times ● Nov. 8, 2017
In patients with epidermolysis bullosa every skin cell has a genetic disorder that limits its ability to grow healthy skin.
From Scientific American ● Nov. 8, 2017
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