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epidermolysis

American  
[e-pi-der-mahl-i-sis] / ˌɛ pɪ dərˈmɑl ɪ sɪs /

noun

  1. the state of having an abnormally loose epidermis, which causes blisters and is often a result of disease.


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It also contains a logo from EB Research Partnership, a nonprofit co-founded by Vedder and his wife, Jill, after a childhood friend’s son was born with the painful skin condition epidermolysis bullosa.

From Los Angeles Times Aug. 27, 2025

The teen was born with dystrophic epidermolysis bullosa, a rare genetic condition that causes blisters all over his body and in his eyes.

From Seattle Times Jul. 24, 2023

He was born with a genetic disease called junctional epidermolysis bullosa that leaves his skin as fragile as a butterfly's wings.

From BBC Dec. 23, 2017

Dr. Uitto also cautioned that epidermolysis bullosa often involves damage to internal tissue, like the lining of the esophagus and urinary tract, that gene therapy for the skin cannot repair.

From New York Times Nov. 8, 2017

Caring for children with epidermolysis bullosa is not cheap either, Marinkovich notes, adding that it can cost $100,000 a year to dress their wounds—which is sometimes not covered by insurance.

From Scientific American Nov. 8, 2017

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