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epidermolysis

American  
[e-pi-der-mahl-i-sis] / ˌɛ pɪ dərˈmɑl ɪ sɪs /

noun

  1. the state of having an abnormally loose epidermis, which causes blisters and is often a result of disease.


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It also contains a logo from EB Research Partnership, a nonprofit co-founded by Vedder and his wife, Jill, after a childhood friend’s son was born with the painful skin condition epidermolysis bullosa.

From Los Angeles Times • Aug. 27, 2025

The proceeds will be donated to EB Research Partnership, a nonprofit that researches treatment and cures for epidermolysis bullosa.

From Seattle Times • Aug. 22, 2023

He was born with a genetic disease called junctional epidermolysis bullosa that leaves his skin as fragile as a butterfly's wings.

From BBC • Dec. 23, 2017

The boy’s disease, junctional epidermolysis bullosa, causes extremely fragile skin that blisters and tears, and is prone to infections and skin cancer.

From New York Times • Nov. 8, 2017

Children with the most serious form of epidermolysis bullosa often die before they reach school age.

From Scientific American • Nov. 8, 2017

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